Friday, October 19, 2012

Staying in Cincinnati

On Tuesday Chris and I had another fetal echo done at Cincinnati Childrens and we met with a CT surgeon. Cincinnati confirmed Dr. Patels dx for Brooklyn. Brooklyn has infradiaphragmatic TAPVC. She also has obstruction but they are unclear at this time of how severe the obstruction is. She also has pulmonary atresia. These two together make her an emergent situation. Due to this I will deliver at Cincinnati Childrens Hospital. Only the most severe cardiac cases deliver there. Brooklyn will undergo immediate open heart surgery. She will get a shunt for pulmonary atresia, and a repair on her pulmonary veins for TAPVC. We are told this will be an all day surgery. 15yrs ago it was a 95% mortality rate, but things have come along since then. Knowing my baby girl will go straight from me into surgery just breaks my heart. We are staying as positive and as strong as possible. Brooklyn is a fighter. She is going to come out and show the world just how tough she is. We were set on going to Boston and thought nothing could change our mind but on Tuesday after the 8hr appt. we left there confident in Cincinnatis ability to care for Brooklyn. Dr. Morales will be Brooklyn's surgeon. He has had much success with heterotaxy patients during his time in Texas, but he is now in Cincinnati and has had success with the few heterotaxy patients he has see here as well. I want to thank everyone for all the support we have received and continue to receive everyday. It means so much to us. My goal for at least the next 7-8 weeks now that we have our plan is to figure out how to keep Brooklyn in as long as possible. Thanks again to everyone for all your love and support. Brooklyn has an awesome crowd rooting her on ♥

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