The journey of a little girl who has to overcome what life has thrown at her with Heterotaxy-Right Atrial Isomerism
Friday, October 19, 2012
Staying in Cincinnati
On Tuesday Chris and I had another fetal echo
done at Cincinnati Childrens and we met with a CT surgeon. Cincinnati
confirmed Dr. Patels dx for Brooklyn. Brooklyn has infradiaphragmatic
TAPVC. She also has obstruction but they are unclear at
this time of how severe the obstruction is. She also has pulmonary
atresia. These two together make her an emergent situation. Due to this I
will deliver at Cincinnati Childrens Hospital. Only the most severe
cardiac cases deliver there. Brooklyn will undergo immediate open heart
surgery. She will get a shunt for pulmonary atresia, and a repair on her
pulmonary veins for TAPVC. We are told this will be an all day surgery.
15yrs ago it was a 95% mortality rate, but things have come along since
then. Knowing my baby girl will go straight from me into surgery just
breaks my heart. We are staying as positive and as strong as possible.
Brooklyn is a fighter. She is going to come out and show the world just
how tough she is. We were set on going to Boston and thought nothing
could change our mind but on Tuesday after the 8hr appt. we left there
confident in Cincinnatis ability to care for Brooklyn. Dr. Morales will
be Brooklyn's surgeon. He has had much success with heterotaxy patients
during his time in Texas, but he is now in Cincinnati and has had
success with the few heterotaxy patients he has see here as well. I want
to thank everyone for all the support we have received and continue to
receive everyday. It means so much to us. My goal for at least the next
7-8 weeks now that we have our plan is to figure out how to keep
Brooklyn in as long as possible. Thanks again to everyone for all your
love and support. Brooklyn has an awesome crowd rooting her on ♥
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